Sanitywarp.org:: Diary of a Trichster

The extension cap has moved further back and is exposing the crown, which I’ve already caused a lot of damage to.  The snow DID indeed cause my appointment last week to be cancelled, and my only other option was to wait an entire week to schedule for the following Wednesday.  Thanks a lot, New England.

In this time I’ve been particularly bad.  I haven’t seen my temporary therapist in some time now and I don’t much see the point of even going to see her at this point as my regular therapist is almost back from her leave.  I will probably see the temporary one more time in the interim.   And hopefully my appointment this Weds will be kept, although it looks like we’re getting even more snow soon. Wonderful!    If not for my appointment getting cancelled last week, none of this severe crown damage would have happened. I am very upset about it.  =(   It’s going to take a very long time for that to grow back now.

The hair on my sides is entirely missing again, as it usually is, but thankfully the extension cap does a good job at hiding this.  The pain and soreness of my scalp is a depressing reminder of the tearing and ripping ..  which I did some of… but usually, it was the singular pulls, and that’s really what kept me locked into doing it for so long.  Everything about it…  the feeling of the hair.  The pleasurable feeling when the hair was pulled… the sound it makes.  Somehow even the sound is good right now.  And of course the biting of the follicle.I just try to remember that right now I’m in a pulling state … and that for awhile, my mind was completely removed from all of this and in a more normal state.  I will be able to get back there again, but I’m going to need the help I was getting before.  And until then, all I can do is try and hide it.  =/

Tags: pulling in bed, obsession, follicle obsession, sore, follicle biting, embarrassment, pulling in morning, pulling in class, follicles, relapse, trichotillomania, hair extensions, ttm, depression, pulling from scalp, crown, trichster, bald spots, trich by Isis
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The disease is once again spreading.  The extension cap has become loose on top and I’ve been able to get at the crown.  :(    It is very bare in some places now.

Getting the cap re-sewn on Wednesday unless the snow storm causes the salon to be closed… I really hope not…

Kind of depressed.  Wanting this month to go by faster so my usual therapist is back from leave and I can resume work with her..

Tags: crown, depression by Isis
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well, it’s been a month now since I started cognitive behavior therapy (CBT).I am sad to say that I don’t see much of a difference yet.  My awareness has been increased a bit, but it has gotten no easier to stop the behavior, despite coming up with a list of incompatible behaviors (putting a hat or gloves on, clasping hands, moving around, etc) … the urge is just too strong for any of that to work.

so, I am taking the plunge and trying medication to go along with the CBT, which is the most successful way of going about this…….I am not sure which medication will be tried first, but I am sure there will be a period of unpleasant trial and error, and I’m sure I’m not going to like the side effects of whatever SSRI I am taking… but… at this point, I am willing to sacrifice other things (like my sexual functionality, which is what the Cymbalta / Duloxetine messed with when I tried it, and the main reason I stopped taking it) to try and conquer this…  if there’s any time to really try medication again, it’s right now.. I seem to have no other choice.  It’s becoming incredibly difficult and frustrating to hide my scalp, which is at least 50% bare, especially from my significant other.  It actually distresses me quite a lot when he wants to spend the night with me now, because it’s extremely uncomfortable to sleep with clip-on extensions (they pull at the hair I do have, making my scalp very sore in the morning)  aside from the fact that the hair is all gross and poor quality now because of sleeping on it so often.  I like seeing him but I find myself wishing he didn’t call me so much, just because of the hair thing…  *sigh* I should be happy to spend time with him =(

I had a massive session just now while writing a final paper for school.  It was just awful… I couldn’t stop.  I even pulled my pubic hair (after I tried putting on a hat, the trich monster just moved along somewhere else) for over 20 minutes which is something I haven’t done in a REALLY long time.  :(

I did dye my roots last night in hopes I won’t get stuck in the mirror pulling all my numerous amounts of grays anymore….

I really hope I can get better.  :(

I will update as things progress..

Tags: school stress, pulling at night, pulling at desk, follicle biting, peer pressure, embarrassment, mgh trich clinic boston, pubic area, significant other, anxiety, cognitive behavioral therapy, treatmeant, restlessness, white hair, trich, ttm, medication, stress, cymbalta, hair extensions, trichotillomania, bald spots, crown, pulling from scalp, pulling, depression, duloxetine by Isis
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wow, it’s been quite awhile since I’ve updated.  I guess I’ve been so busy with school and other stuff that it hasn’t been on my mind too much.   Although I’ve tried a few new things since the last time I wrote (started seeing the homeopath about 6 weeks ago, got ridiculously expensive fusion hair extensions from one of the supposedly best salons from around here, they ended up being AWFUL!!),  I am still largely in the same place as before.  I’ve got 3 huge bald patches in the usual places… crown and either side, near temples.I’ve been dealing with a lot of stress and anxiety, so I’m not surprised I’m not doing too well at the moment.  I’m also depressed because of the hair stuff and some other things in general.  Thanks to my acrylic nails though, I still have my brows and lashes, at least.  I am currently on the waitlist for the MGH Trich clinic, and it could be several months before I get in there.  I hope it’s sooner.  :/   I will go into more detail about some of the stuff I’ve tried, next time  I write, which will hopefully not be too much longer from now.   But I thought I’d put a brief entry in here for the time being.   so.. until then..

Tags: pulling at desk, sore, pulling in bed, white hair, pulling in class, pulling in morning, mgh trich clinic, pulling at night, school stress, pulling at mirror, self esteem, crown, trichotillomania, hair extensions, ttm, trich, depression, pulling from scalp, trichster, bald spots, alternative healing, stress by Isis
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 why does it feel so good to do this??  =( it’s just so unfair that it relieves so much tension… I had a stressful day… and sometimes, I just really  can’t stop it… but by the time the tension has gone away.. I’m in trance mode and can’t stop even though I want to.I keep trying to make myself be aware of the reality of the situation…. this is my own hair… that is on my head for a reason, and I am tearing it out and causing severe damage to my scalp!   But somehow, it just doesn’t want to register like that, all I can think of is ‘oooh that feels good, oh, that one was even better.  maybe there’s another follicle to bite now!’   It’s like repeating a word over and over again until all of a sudden, it just looses meaning… all you can focus on is the sound, and not the word anymore.  But the reality is this:  What I’m doing is disgusting!!  Imagine if anyone ever could see me like this, while I’m this bad?  There’s hair sticking all over me,  piles of HAIR that just came from my head,  there’s strands of it everwhere, all over my bed, I’m SLEEPING in it. arrrrggg =(I have to wear a bandana now to cover up the huge bald area on the top of my head now.  I can’t even wrap the extensions around my head to cover it completely anymore, this is really bad heh.  I should probably take a picture to illustrate just how bad.  It’s def as bad as it was a couple years ago, when I first got some extensions put in, and then had to shave my head for awhile again after, because I just couldn’t be responsible enough to DESERVE hair.thank goodness help will be on the way soon.  the trip to the salon went well the other day, but now I have to go to a seperate branch of the salon on Tuesday.   because the spot on top is so bad, I have to have a fake hair piece - it looks like a partial wig - sewn into my hair first,  (if I can MAKE it that long without pulling out even more, that is!  =(   It needs SOME hair on the sides to anchor on to, and now that’s dissapearing with each passing day…) at the first salon, and then go to their other location, to get the extensions put in afterwards.   All this is going to cost me about $350  (the fake hair piece system is $250) plus the extensions.  and I’ll have to go back every month and spend another $120ish or something like that to get everything re-positioned.I don’t even know how much money I’ve spent because of trich anymore, but it’s in the thousands, including solutions to hide it and some therapy that did or did not work.  I haven’t had cash to see a homeopath yet (frankly, I’m not entirely sure that I can really afford this round of hair stuff, so I think some of it’s gonna have to go on a credit card… eek..) and at this point I’m wondering if I should try to go back on any medication.  I’d really rather not do that but the last couple of years it’s the worst it’s ever been in all 12 years, and… I would really like to actually get a grip on it….oh, and as a side note, apparently I have to grow my right thumb and forefingers’ acrylic nails again, as I have not had a full left eyebrow in 2 weeks now.  I guess I can’t handle the responsibility of having short nails again, either.blah.  well, wish me luck at the second salon this week!    (ps… I don’t know what’s up with the lack of line breaks in wordpress all of a sudden, how irritating..!  Hope to get that figured out soon)

Tags: pulling in bed, follicle obsession, follicles, follicle biting, acrylic nails, pulled all day, pull diary, wigs, pulling eyebrows, relapse, ttm, trich, medication, hair extensions, trichotillomania, crown, bald spots, pulling from scalp, eyebrows by Isis
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